Our helpline will be

closed

on Tuesday 10 November 2026

Our latest

News

Browse categories

Pancreatic Enzyme Replacement Therapy (PERT) Update 

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. We explain what manufacturers, the NHS and the Department of Health are doing, and where to turn for help.

Published: 3 weeks ago

By Leanne Talbot

Published: 3 weeks ago

By Leanne Talbot

Clinical Trials & Research: The Importance of the Patient’s Perspective

Last year, Neuroendocrine Cancer UK's Patient Support Co-ordinator, and neuroendocrine cancer patient, Kate, gave a presentation to Ipsen, the…

Published: 3 years ago

By Leanne Talbot

Published: 3 years ago

By Leanne Talbot

UKI NETS 21st Annual Conference 2023 – Registration Open

UKI NETS 21st Annual Conference 2023 – Sheffield City Hall Monday 4th December The UKI NETS 21st Annual conference will be held in person at Sheffield…

Published: 3 years ago

By Neuroendocrine Cancer UK

Published: 3 years ago

By Neuroendocrine Cancer UK

Neuroendocrine cancer: an ideal patient care pathway: Addressing inequities in diagnosis, care, and support.

Neuroendocrine cancers, also known as neuroendocrine neoplasms (NENs), are a diverse group of cancers that have been increasing in incidence and…

Published: 3 years ago

By Leanne Talbot

Published: 3 years ago

By Leanne Talbot

The Big Cancer52 Conversation

The Big Cancer52 Conversation on Wednesday 14th June brought together leaders from the charity, healthcare and pharmaceutical sectors, to share best…

Published: 3 years ago

By Neuroendocrine Cancer UK

Published: 3 years ago

By Neuroendocrine Cancer UK

From Cancer Diagnosis to Parenting with Purpose, by Kate

Name: Kate Neuroendocrine Cancer site: Tail of pancreas and secondaries in the liver KATE’S STORY Hello, my name is Kate and I have been living with…

Published: 3 years ago

By Neuroendocrine Cancer UK

Published: 3 years ago

By Neuroendocrine Cancer UK

Embrace the Outdoors, Miles for a Cause

If you've been scratching your head, wondering how to keep the summer holiday excitement going, fret no more! We have got your back! 😄     It's time to…

Published: 3 years ago

By Leanne Talbot

Published: 3 years ago

By Leanne Talbot

Professor Newell-Price, new President-elect at The Endocrine Society

Listen and Learn from Patients:  An interview with Professor Newell-Price, new President-elect at The Endocrine Society "Trained by Titans of Clinical…

Published: 3 years ago

By Neuroendocrine Cancer UK

Published: 3 years ago

By Neuroendocrine Cancer UK

Episode 2 of the ‘Not Just NE Cancer Takeover Series’ Explores RareCan’s Innovative Research Platform

We are excited to announce that Episode 2 of the "Not Just NE Cancer Takeover Series" is now live! In this captivating episode, our Campaigns Lead, Lisa…

Published: 3 years ago

By Leanne Talbot

Published: 3 years ago

By Leanne Talbot

Join the Pathway Virtual Challenge and Support Neuroendocrine Cancer Research!

We are thrilled to announce the launch of the Pathway Virtual Challenge, an exciting nationwide event aimed at advancing neuroendocrine cancer research…

Published: 3 years ago

By Leanne Talbot

Published: 3 years ago

By Leanne Talbot
Load more articles