We are delighted to share highlights from the latest newsletter from INCA (International Neuroendocrine Cancer Alliance) – please note that while some initiatives may be country/region specific, there are parallels: similarities, and differences, that resonate across and throughout our global community.
INCA Monthly Newsletter – subscribe here.
July Newsletter Highlights Include:
CDDF Webinar on Beating Cancer in Europe: Experts Put the Spotlight on Working Together to Drive Change by Inclusion of the Disruptive Voice of Patients.
From nowhere, the term ‘disruption’ has become a word used (and misused) in everyday language.
For many of us, it has traditionally had a negative meaning: for example, “he was always disruptive – causing trouble.”
However, it can be used more positively – indeed in business, it has come to mean something that can “change the traditional way that an industry operates, especially in a new and effective way.”
Last month CRUK shared a podcast “Scientific disruption: what is it, and do we need it?” – you can listen here.
Disruptive science has been defined as “work that introduces breaks with the status quo and carves out new directions for scientific inquiry” (Park et al., 2023, Nature).
So, “inclusion of the Disruptive Voice of Patients” can be seen as a call to arms to drive forward positive change – to use our lived experiences and voices to challenge existing barriers and assumptions to address and correct current inequities.
NETInfoPacks: The NETInfo multilingual library, a global collaborative including Neuroendocrine Cancer UK, now offers a total of 26 web-based factsheets about neuroendocrine cancer in 10 of the most spoken languages worldwide: Arabic, Chinese, French, English, German, Hindi, Japanese, Italian, Russian, and Spanish.
LACNETS Webinar on Navigating Clinical Trials August 19th: A further resource adding to information shared by Neuroendocrine Cancer UK over recent months – see our News and Research pages and/or watch Kate’s talk here.
To find out more and register for the LACNETS webinar, please follow the link provided here: https://www.lacnets.org/aug2023.
You can read the July newsletter in full here.