Eleanor was 46 when a pancreatic NET was found in 2017. Told surgery would be too risky at The Royal Marsden, she was referred to King's ...
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Everyone’s experience of neuroendocrine cancer is different. Here, patients share their personal stories, offering insights into the challenges, emotions and everyday realities of living with neuroendocrine cancer.
Eleanor was 46 when a pancreatic NET was found in 2017. Told surgery would be too risky at The Royal Marsden, she was referred to King's ...
Katie was diagnosed in October 2015 with a pancreatic primary and went through a distal pancreatectomy, liver ablation, PRRT and more before transplant was ever discussed. ...
Alison was diagnosed with a small bowel NET in autumn 2022 and treated at the Royal Free London. A liver transplant was first mentioned by her ...
Jon was 33 when he was diagnosed with a small bowel NET and liver secondaries. Sixteen years later he underwent a liver transplant at the Royal ...
Julie was diagnosed with Multiple Endocrine Neoplasia Type 1 (MEN1) in 2002, a rare inherited condition that raises the risk of developing tumours. She explains what ...
Mary is 28 and her partner Tom was diagnosed with stage 4 neuroendocrine tumours last year, aged 27. With a four-year-old son, they now advocate for ...
David lives in Tunbridge Wells and is cared for by the lung oncology team at Maidstone and Tunbridge Wells, working alongside the NET specialists at King's ...
Chrissie has been an ambassador for several years and is now Chair of Neuroendocrine Cancer UK's Ambassador Network. She talks about what inspires her, what the ...
Rachel had never heard of neuroendocrine cancer until she was diagnosed — neither, it seemed, had the consultant who delivered the news. What began as a ...
Two months after their wedding, Jon was diagnosed with a primary small bowel NET that had already spread to his liver, and given a five-year life ...
Anna had a biopsy in July 2025 that found multiple neuroendocrine tumours in her lungs, picked up on a CT scan taken before surgery for head ...
Everyone’s experience of neuroendocrine cancer is different. Take your time, and engage with the stories in whatever way feels right for you.
Sharing what you’re going through with others can be incredibly powerful, helping others to feel less alone, find hope and reassurance, and feel more confident and empowered.
If you have a story to share, we would love to hear from you.
We’re always looking for people to share their experiences with Neuroendocrine Cancer. Whether you have the personal experience yourself or through a family member or friend, we use stories on our website, on social media, in our patient information, and on occasion, in the press.
By raising awareness of Neuroendocrine Cancer (NC), we can reach and help more people. Personal stories highlight many relevant aspects of living with NC.
Experiences provide insights that support the education of healthcare professionals, raise awareness of possible signs and symptoms pre diagnosis, raise awareness of NC in the general public arena and encourage and inspire other people who have just started their pathway.
Please complete the form below to share your story.
Everyone’s experience of neuroendocrine cancer is different. Some stories may offer hope and reassurance, while others may be difficult or upsetting to read or hear. Take your time, and engage with the stories in whatever way feels right for you.
Remember that treatments and outcomes vary from person to person. These stories offer personal perspectives and support, but should not replace advice from your own healthcare team. If something raises questions about your care, speak to your doctor or clinical nurse specialist.
You do not have to face this alone. Support is here when you are ready.
The stories and opinions shared here reflect the personal experiences and views of individual contributors and do not necessarily reflect those of Neuroendocrine Cancer UK. They are provided for information and support and are not a substitute for professional medical advice.