Eleanor was 46 when a pancreatic NET was found in 2017. Told surgery would be too risky at The Royal Marsden, she was referred to King's ...
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Everyone’s experience of neuroendocrine cancer is different. Here, patients share their personal stories, offering insights into the challenges, emotions and everyday realities of living with neuroendocrine cancer.
Eleanor was 46 when a pancreatic NET was found in 2017. Told surgery would be too risky at The Royal Marsden, she was referred to King's ...
Katie was diagnosed in October 2015 with a pancreatic primary and went through a distal pancreatectomy, liver ablation, PRRT and more before transplant was ever discussed. ...
Name: Allison Age: 41 Neuroendocrine Cancer Site: Primary - Pancreas with Lymph Node spread Allison's Story: In 2018, at the age of 38, I was diagnosed ...
Name: Sophie Age: 52 Neuroendocrine Cancer Site: Glucagonoma - pancreas (primary), paraaortic retroperitoneal lymph nodes (secondary). Sophie's Story: When is a rash not a rash? ...
Name: Deborah Age: 60 Neuroendocrine Cancer Site: Primary to small bowel. Metastasis to liver. Deborah's story: I was diagnosed in February 2016 with small bowel Neuroendocrine ...
WORKING WITH CANCER What do you do when your employer is expecting the worst for you ‘just’ because you have had a cancer diagnosis? What do ...
Name: Barbara Age: 58 Neuroendocrine Cancer Site: Lung Barbara's story: November 2019 I was offered a lung screening as part of a so called SUMMIT study ...
Name: Sarah Age: 42 Neuroendocrine Cancer Site: MINEN in colon Sarah's Story: I was feeling pretty tired in 2019, but with three young kids I didn’t ...
This is the sort of situation where terminology can trip us up. I was diagnosed in 2009 with metastatic NETs. ...
My family and friends got me through this - I cannot emphasise enough how important a support network is for both practical and emotional support. Don’t ...
Name: Lisa Age: 51 Neuroendocrine Cancer site(s): Primary is unknown and metastasis to the Liver. Lisa's Story: Hi, my name is Lisa. I married to Stu ...
Everyone’s experience of neuroendocrine cancer is different. Take your time, and engage with the stories in whatever way feels right for you.
Sharing what you’re going through with others can be incredibly powerful, helping others to feel less alone, find hope and reassurance, and feel more confident and empowered.
If you have a story to share, we would love to hear from you.
We’re always looking for people to share their experiences with Neuroendocrine Cancer. Whether you have the personal experience yourself or through a family member or friend, we use stories on our website, on social media, in our patient information, and on occasion, in the press.
By raising awareness of Neuroendocrine Cancer (NC), we can reach and help more people. Personal stories highlight many relevant aspects of living with NC.
Experiences provide insights that support the education of healthcare professionals, raise awareness of possible signs and symptoms pre diagnosis, raise awareness of NC in the general public arena and encourage and inspire other people who have just started their pathway.
Please complete the form below to share your story.
Everyone’s experience of neuroendocrine cancer is different. Some stories may offer hope and reassurance, while others may be difficult or upsetting to read or hear. Take your time, and engage with the stories in whatever way feels right for you.
Remember that treatments and outcomes vary from person to person. These stories offer personal perspectives and support, but should not replace advice from your own healthcare team. If something raises questions about your care, speak to your doctor or clinical nurse specialist.
You do not have to face this alone. Support is here when you are ready.
The stories and opinions shared here reflect the personal experiences and views of individual contributors and do not necessarily reflect those of Neuroendocrine Cancer UK. They are provided for information and support and are not a substitute for professional medical advice.