Eleanor was 46 when a pancreatic NET was found in 2017. Told surgery would be too risky at The Royal Marsden, she was referred to King's ...
Our helpline will be
closed
on Tuesday 10 November 2026
Everyone’s experience of neuroendocrine cancer is different. Here, patients share their personal stories, offering insights into the challenges, emotions and everyday realities of living with neuroendocrine cancer.
Eleanor was 46 when a pancreatic NET was found in 2017. Told surgery would be too risky at The Royal Marsden, she was referred to King's ...
Katie was diagnosed in October 2015 with a pancreatic primary and went through a distal pancreatectomy, liver ablation, PRRT and more before transplant was ever discussed. ...
I’m Maxine Patterson and seventy-four years old. I was a deputy headteacher, but my first love was teaching English. I really enjoyed the connection with young ...
Aged 24, diagnosed with Neuroendocrine Cancer of the Pancreas. You can follow George's journey and check out the amazing support that he has received from many ...
PURSUING A PARAGANGLIOMA Looking back now, all the pieces fit together. However, at the time it was entirely a different story. Initially, I noticed a distinct ...
Name: Donna Age: 56 Neuroendocrine Cancer site(s): Primary = bowel and Secondary = liver Donna's Story: I'm a mum of 2 grown up children who I'm ...
My name is Janet, I am 66 years young and have been diagnosed with NET’s in my bowel, liver and pancreas, after lots of tests and ...
I am a Wife, a Mum, a Grandmother, a Sister, an Aunt and of course, a Friend. How hard was it for me to hear that ...
LIKE BEING HIT BY A BASEBALL BAT I was so shocked when I was diagnosed with a Neuroendocrine Tumour at Stoke Hospital in June 2020. I ...
Being diagnosed with neuroendocrine cancer tips life upside down (as will any type of cancer diagnosis) .It can take a long time to come to terms ...
I was so shocked when I was diagnosed with a Neuroendocrine Tumour at Stoke Hospital in June 2020. I called it a ‘baseball bat’ moment. ...
Everyone’s experience of neuroendocrine cancer is different. Take your time, and engage with the stories in whatever way feels right for you.
Sharing what you’re going through with others can be incredibly powerful, helping others to feel less alone, find hope and reassurance, and feel more confident and empowered.
If you have a story to share, we would love to hear from you.
We’re always looking for people to share their experiences with Neuroendocrine Cancer. Whether you have the personal experience yourself or through a family member or friend, we use stories on our website, on social media, in our patient information, and on occasion, in the press.
By raising awareness of Neuroendocrine Cancer (NC), we can reach and help more people. Personal stories highlight many relevant aspects of living with NC.
Experiences provide insights that support the education of healthcare professionals, raise awareness of possible signs and symptoms pre diagnosis, raise awareness of NC in the general public arena and encourage and inspire other people who have just started their pathway.
Please complete the form below to share your story.
Everyone’s experience of neuroendocrine cancer is different. Some stories may offer hope and reassurance, while others may be difficult or upsetting to read or hear. Take your time, and engage with the stories in whatever way feels right for you.
Remember that treatments and outcomes vary from person to person. These stories offer personal perspectives and support, but should not replace advice from your own healthcare team. If something raises questions about your care, speak to your doctor or clinical nurse specialist.
You do not have to face this alone. Support is here when you are ready.
The stories and opinions shared here reflect the personal experiences and views of individual contributors and do not necessarily reflect those of Neuroendocrine Cancer UK. They are provided for information and support and are not a substitute for professional medical advice.