Eleanor was 46 when a pancreatic NET was found in 2017. Told surgery would be too risky at The Royal Marsden, she was referred to King's ...
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Everyone’s experience of neuroendocrine cancer is different. Here, patients share their personal stories, offering insights into the challenges, emotions and everyday realities of living with neuroendocrine cancer.
Eleanor was 46 when a pancreatic NET was found in 2017. Told surgery would be too risky at The Royal Marsden, she was referred to King's ...
Katie was diagnosed in October 2015 with a pancreatic primary and went through a distal pancreatectomy, liver ablation, PRRT and more before transplant was ever discussed. ...
Name: Paul Neuroendocrine Cancer Site: Small Bowel Primary, Liver Metastases Diagnosis: November 2022 Neuroendocrine Cancer Hospital: Queen Elizabeth, Birmingham - Paul's Story I suspect my route ...
Name: Midge Neuroendocrine Cancer Primary Site: Small Bowel Diagnosed: December 2023 Neuroendocrine Cancer Specialist Centre: Queen Elizabeth Hospital, Birmingham - Midge's Story “Mr Jones, we think ...
Laura works for the North West Ambulance Service and considered herself resilient — until a lung atypical carcinoid diagnosis in March 2024 tested her emotionally and ...
Name : Donna Neuroendocrine Cancer Site(s): Likely small bowel, and possibly the pancreas Diagnosed : December 2023 Neuroendocrine Cancer Hospital: ...
Name : Hayley Neuroendocrine Cancer Site: Lung (Typical Carcinoid) Neuroendocrine Cancer Hospital: Oxford Churchill NET Centre of Excellence Diagnosis : ...
One way or another, a cancer diagnosis is life changing. And when you are living with cancer, there will always be periods of time when your ...
Name: Angela Neuroendocrine Cancer Site: Ileum Hospital: Southampton Diagnosed: 2019 - Angela's Story Living with neuroendocrine tumours (NETS) is such a double-edged sword, isn’t it? ...
Melanie had no symptoms, so it is the missed years that frighten her most: she had been living with an atypical lung carcinoid for several years ...
Name: Louise Neuroendocrine Cancer Primary Site: Maxillary Sinus Diagnosed: January 2024 Hospital: Morriston Hospital, South Wales - Louise's Story - Diagnosis The 3rd of January 2024 ...
Everyone’s experience of neuroendocrine cancer is different. Take your time, and engage with the stories in whatever way feels right for you.
Sharing what you’re going through with others can be incredibly powerful, helping others to feel less alone, find hope and reassurance, and feel more confident and empowered.
If you have a story to share, we would love to hear from you.
We’re always looking for people to share their experiences with Neuroendocrine Cancer. Whether you have the personal experience yourself or through a family member or friend, we use stories on our website, on social media, in our patient information, and on occasion, in the press.
By raising awareness of Neuroendocrine Cancer (NC), we can reach and help more people. Personal stories highlight many relevant aspects of living with NC.
Experiences provide insights that support the education of healthcare professionals, raise awareness of possible signs and symptoms pre diagnosis, raise awareness of NC in the general public arena and encourage and inspire other people who have just started their pathway.
Please complete the form below to share your story.
Everyone’s experience of neuroendocrine cancer is different. Some stories may offer hope and reassurance, while others may be difficult or upsetting to read or hear. Take your time, and engage with the stories in whatever way feels right for you.
Remember that treatments and outcomes vary from person to person. These stories offer personal perspectives and support, but should not replace advice from your own healthcare team. If something raises questions about your care, speak to your doctor or clinical nurse specialist.
You do not have to face this alone. Support is here when you are ready.
The stories and opinions shared here reflect the personal experiences and views of individual contributors and do not necessarily reflect those of Neuroendocrine Cancer UK. They are provided for information and support and are not a substitute for professional medical advice.