Eleanor was 46 when a pancreatic NET was found in 2017. Told surgery would be too risky at The Royal Marsden, she was referred to King's ...
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Everyone’s experience of neuroendocrine cancer is different. Here, patients share their personal stories, offering insights into the challenges, emotions and everyday realities of living with neuroendocrine cancer.
Eleanor was 46 when a pancreatic NET was found in 2017. Told surgery would be too risky at The Royal Marsden, she was referred to King's ...
Katie was diagnosed in October 2015 with a pancreatic primary and went through a distal pancreatectomy, liver ablation, PRRT and more before transplant was ever discussed. ...
Kath was diagnosed in June 2015, six weeks before her grandson was born. Eleven years on, she reflects on telling family and friends, and on her ...
Bethann was diagnosed with a small bowel NET in 2019. Being neurodivergent, she is used to wearing a mask — and masking, she says, is also ...
Kim was diagnosed with a small bowel NET in December 2024, though looking back her first symptoms date to 2012. Now living with inoperable disease and ...
Craig has lived with neuroendocrine cancer for 12 years: a small bowel primary with liver metastases, and carcinoid syndrome that shapes every day. He explains what ...
Shan was diagnosed with a pancreatic NET in March 2025 after months of stomach trouble, an ultrasound arranged by her GP and a call no one ...
... After being diagnosed with a rare lung neuroendocrine tumour, Chris’s journey has involved major surgery, ongoing treatment, and learning to navigate life with neuroendocrine cancer. ...
Name: Julie Type: MEN1 (Multiple Endocrine Neoplasia) Hospital: Leicester Royal Infirmary Date of Diagnosis: May 2025 - Julie's Story My Road to Diagnosis My mother had ...
Kerie became an ambassador in July 2025 and joined our media campaign to raise awareness of neuroendocrine cancer. This is her account of living with a ...
Name: Andy Neuroendocrine Cancer Site: Pancreas Diagnosed: December 2024 - Andy's Story I was diagnosed at the end of 2024, with a Grade 3 neuroendocrine tumour ...
Everyone’s experience of neuroendocrine cancer is different. Take your time, and engage with the stories in whatever way feels right for you.
Sharing what you’re going through with others can be incredibly powerful, helping others to feel less alone, find hope and reassurance, and feel more confident and empowered.
If you have a story to share, we would love to hear from you.
We’re always looking for people to share their experiences with Neuroendocrine Cancer. Whether you have the personal experience yourself or through a family member or friend, we use stories on our website, on social media, in our patient information, and on occasion, in the press.
By raising awareness of Neuroendocrine Cancer (NC), we can reach and help more people. Personal stories highlight many relevant aspects of living with NC.
Experiences provide insights that support the education of healthcare professionals, raise awareness of possible signs and symptoms pre diagnosis, raise awareness of NC in the general public arena and encourage and inspire other people who have just started their pathway.
Please complete the form below to share your story.
Everyone’s experience of neuroendocrine cancer is different. Some stories may offer hope and reassurance, while others may be difficult or upsetting to read or hear. Take your time, and engage with the stories in whatever way feels right for you.
Remember that treatments and outcomes vary from person to person. These stories offer personal perspectives and support, but should not replace advice from your own healthcare team. If something raises questions about your care, speak to your doctor or clinical nurse specialist.
You do not have to face this alone. Support is here when you are ready.
The stories and opinions shared here reflect the personal experiences and views of individual contributors and do not necessarily reflect those of Neuroendocrine Cancer UK. They are provided for information and support and are not a substitute for professional medical advice.