Eleanor was 46 when a pancreatic NET was found in 2017. Told surgery would be too risky at The Royal Marsden, she was referred to King's ...
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Everyone’s experience of neuroendocrine cancer is different. Here, patients share their personal stories, offering insights into the challenges, emotions and everyday realities of living with neuroendocrine cancer.
Eleanor was 46 when a pancreatic NET was found in 2017. Told surgery would be too risky at The Royal Marsden, she was referred to King's ...
Katie was diagnosed in October 2015 with a pancreatic primary and went through a distal pancreatectomy, liver ablation, PRRT and more before transplant was ever discussed. ...
Name: Angela Neuroendocrine Cancer Primary Site: Ileum Specialist Centre: Southampton Diagnosed: 2019 - Angela's Story - To Work or Not to Work? That is the question. ...
Name: Jane Neuroendocrine Cancer Primary Site: Pancreas Centre of Excellence: Royal Free, London Diagnosed: 2016 - Jane's Story My Diagnosis I read about a lot of ...
Chrissie was diagnosed with a pancreatic neuroendocrine cancer in December 1997 and is now in her twenty-eighth year of living with it. She asks how she ...
Name: Maxine Neuroendocrine Cancer Site: Primary site: Small Bowel Centre of Excellence: Newcastle Freeman Diagnosed: 2015 - Maxine's Story I was diagnosed in November 2015 - ...
Name: Kath Neuroendocrine Cancer Primary Site: Small Bowel Centre of Excellence: The Christie Manchester Diagnosed: 2015 - Kath's Story Living with Long-Term Uncertainty The longer we ...
Name: Tim Neuroendocrine Cancer Primary Site: Stomach - Type 3 Centre of Excellence: Kings College London Date of Diagnosis: September 2024 - Tim's Story: An Unexpected ...
Name: Davinya Neuroendocrine Cancer Primary Site: Small Bowel and Lung Hospital: The Christie NHS Foundation Trust - Davinya's Story The Unexpected Discovery My neuroendocrine cancer story ...
Name: Melanie Neuroendocrine Cancer Site: Lung NETS (also known as Typical Carcinoid Lung) Hospital: Diagnosed at St George’s University Hospital London* Date Diagnosed: March 2020 - ...
Name: Margaret Watt Diagnosed: 2018. Primary Site: Small Bowel UK NET Centre of Excellence: Glasgow Beatson - Introduction My name is Margaret, and I am grandmother ...
Everyone’s experience of neuroendocrine cancer is different. Take your time, and engage with the stories in whatever way feels right for you.
Sharing what you’re going through with others can be incredibly powerful, helping others to feel less alone, find hope and reassurance, and feel more confident and empowered.
If you have a story to share, we would love to hear from you.
We’re always looking for people to share their experiences with Neuroendocrine Cancer. Whether you have the personal experience yourself or through a family member or friend, we use stories on our website, on social media, in our patient information, and on occasion, in the press.
By raising awareness of Neuroendocrine Cancer (NC), we can reach and help more people. Personal stories highlight many relevant aspects of living with NC.
Experiences provide insights that support the education of healthcare professionals, raise awareness of possible signs and symptoms pre diagnosis, raise awareness of NC in the general public arena and encourage and inspire other people who have just started their pathway.
Please complete the form below to share your story.
Everyone’s experience of neuroendocrine cancer is different. Some stories may offer hope and reassurance, while others may be difficult or upsetting to read or hear. Take your time, and engage with the stories in whatever way feels right for you.
Remember that treatments and outcomes vary from person to person. These stories offer personal perspectives and support, but should not replace advice from your own healthcare team. If something raises questions about your care, speak to your doctor or clinical nurse specialist.
You do not have to face this alone. Support is here when you are ready.
The stories and opinions shared here reflect the personal experiences and views of individual contributors and do not necessarily reflect those of Neuroendocrine Cancer UK. They are provided for information and support and are not a substitute for professional medical advice.