Supporting the

Neuroendocrine Cancer Community

Surprised by Beauty, Tom’s NET Story

On January 2, 2015, I had a life-changing experience: I almost died. I was suddenly hospitalized with internal bleeding caused by a neuroendocrine tumor (NET) on my pancreas, which had metastasized to my liver. The tumors were crushing my spleen and pressing against a...

Mike’s Neuroendocrine Cancer Story

I still feel hesitant in drawing attention to myself and the fact that I have NET cancer. However awareness is the key because if you don’t know about NET cancer how can you detect it and the sooner you do detect it the better your chances of controlling it.   My...

Christine’s NET story

My journey with Neuroendocrine Cancer started 20 years ago. I wasn’t aware at the very beginning that it was a NET that had made me ill.  I was 29 weeks pregnant at the time and have to admit it hadn’t been the easiest of pregnancies. From the beginning I had...

Richard’s NET journey

From the outset, my treatment plan has been clearly laid out and what I have been told was going to happen has happened.  Initially I was advised that I would start on Octreotide injections, have surgery and an embolization procedure followed up by a course of...

Sharon’s NET story

My NET story Have you ever had certain symptoms and “self diagnosed” yourself? I have and it nearly killed me! Years ago, I began getting diarrhoea, I did actually go to the Dr’s this time. I was referred to the hospital, had tests and they found I had some cyst,...

Lyn’s poem about being a NET patient

What does it mean to you? What does it mean to you…  … the Nurse Practitioner who shrugged her shoulders when I begged her for help?  … the consultant who prescribed me anti-depressants? … the consultant who advised me to drink mint...