Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
NCUK 2021 Skydiving Challenge
https://www.neuroendocrinecancer.org.uk/wp-content/uploads/2021/01/Im-taking-part-in-the-NCUK-2021.mp4 One month today, Neuroendocrine Cancer supporters all over the UK will be taking part in our biggest challenge yet - the NCUK 2021 Skydiving Challenge. Our...
Do you C us? Bob’s story
The ‘Do You C Us?’ campaign is raising awareness of the challenges facing people living with rare and less common cancers. Robert (Bob), Neuroendocrine Cancer patient has joined the campaign and shared his story: “I was first diagnosed with ‘bowel cancer’ in my late...
Research Needs in Nutritional Care
📽️ During August, we're posting videos from our Patient Education Event, for anyone who missed them first time round, and for our newly diagnosed community. Today's is by Tara Whyand: Research Needs in Nutritional Care.