Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
Prof Valle – Treatments across the Neuroendocrine Cancer spectrum
Throughout August, we're posting the videos from our 2020 Patient Education Event, for anyone who missed them first time round and our newly diagnosed community. Today's is by Professor Juan Valle, of The Christie NHS Trust Manchester UK: https://vimeo.com/476037330...
Neuroendocrine Cancer, End of Life Care
Neuroendocrine Cancer 🕊️End of life care End of life care is sometimes called advance care planning, and involves thinking and talking about your wishes for how you’re cared for in the final months of your life. This can include treatments you do not want to have. ...
Prevalence of self-reported side effects in neuroendocrine tumour patients prescribed somatostatin analogues
A publication on the prevalence of self-reported side effects in neuroendocrine tumour patients prescribed somatostatin analogues written by Catherine Bouvier, Tara Whyand and Philippa Davies was featured in the British Journal of Nursing in 2018. Somatostatin...