Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
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5-HIAA 24 hour Urine Collection Test
5-HIAA 24 hour Urine Collection Test Urinary 5-HIAA (5-hydroxyindoleacetic acid) 5-HIAA is a breakdown product of a hormone called serotonin which is excreted from the body in urine. It is an indirect way to measure how much serotonin is in the body. Serotonin can be...
When is a rash not a rash?
Name: Sophie Age: 52 Neuroendocrine Cancer Site: Glucagonoma - pancreas (primary), paraaortic retroperitoneal lymph nodes (secondary). Sophie's Story: When is a rash not a rash? My NET story probably begins some time before 2014, but that is the year I first started...