Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
Neuroendocrine Cancer UK’s June Newsletter
Welcome to our newsletter! As you read through, you will see that there are multiple components to running a patient organisation. We are a ‘small but vital charity’ doing a wide range of activities, ensuring that the message we are shouting gets heard across many...
Neuroendocrine Cancer Carers and Supporters
Carers Week is an annual awareness campaign that celebrates and recognises the vital contribution of the UK’s unpaid carers – supporting family members and friends who are older, younger, have a disability, mental or physical illness or need extra help with everyday...
Neuroendocrine Cancer of the Pancreas – Functioning / Non Functioning
In Pancreatic Neuroendocrine Cancer – you may hear the terms “Functioning” (meaning “with hormone related symptoms”) or “Non-functioning” (meaning “without hormone related symptoms”). Functioning or non-functioning may also be terms used to describe whether these...