Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
Patient perspectives, from diagnosis through treatments and beyond
Neuroendocrine Cancer UK is excited to announce that its publication “Patient Perspectives, from Diagnosis Through Treatments and Beyond”, co-authored by Catherine Bouvier and Nicola Jervis, has been published in Current Opinion in Endocrine and Metabolic Research -...
Understanding How Type 1 Gastric Neuroendocrine Tumours Develop
Each year, Neuroendocrine Cancer UK offer a research grant to the UK's medical research community, and we publish an update on the work undertaken and projects achieved by our Grant Awardees. This month, we're featuring an update by Mark Pritchard - Professor of...
New Neuroendocrine Cancer Patient Ambassador
Please join us in welcoming our newest Ambassador, Maxine to the team 🦋 Maxine is 74 and previously a Deputy Head Teacher. Here's a snippet of Maxine's story: 💬 I’m Maxine Patterson and seventy-four years old. I was a deputy headteacher, but my first love was...