Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
Run for Neuroendocrine Cancer UK in the Great Birmingham Run
Birmingham’s biggest and best running events return to the city’s streets in 2021, and this year it’s all about the comeback! Take your place on the Great Birmingham Run half marathon start line and be part of the celebration. Neuroendocrine Cancer UK have four...
Neuroendocrine Cancer Support Groups
“This group is so friendly and so genuinely caring that people are prepared to talk openly about things they may not have said to anyone else . . . and I just think that’s a wonderful atmosphere that’s produced here in the group.” Our ‘Natter’ Support Groups are local...
Merkel Cell Carcinoma (MCC)
Neuroendocrine Cancer UK is supporting Skin Cancer Awareness Month. Merkel cell carcinoma (MCC) is a rare, highly aggressive skin cancer, primarily affecting older patients, and thought to arise from the cutaneous Merkel cell, a neuroendocrine cell. The exact cause...