Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
End of life care
This week is Dying Matters Awareness Week and although this is often a very difficult subject to think about, it allows individuals and those who care about and for them, personally and professionally, to come together to open up the conversation around dying, death...
Become a Neuroendocrine Cancer Corporate Sponsor
🏆 BECOME A NEUROENDOCRINE CANCER CORPORATE SPONSOR 🏆 How Your Company Can Get Involved? There are many ways that your company can get involved with Neuroendocrine Cancer UK and we will work with you every step of the way. 👏 Make NCUK your Charity of the Year ...
Presenting Symptoms and Delay in Diagnosis of Gastrointestinal and Pancreatic NETs
Presenting Symptoms and Delay in Diagnosis of Gastrointestinal and Pancreatic Neuroendocrine Tumours - the first survey to establish a median time to diagnosis of 36 months for Small Bowel NETs and 24 months for Pancreatic (pNETs). Read the full report here ➡️ ...