Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
Managing anxiety and hormone surges
We are supporting Stress awareness month. Neuroendocrine Cancer UK's Psychotherapist, Kym Winter explains how to manage anxiety and hormone surges. Watch video below: Managing anxiety and hormone surges
Large and Small Bowel Neuroendocrine Cancer
April is Bowel Cancer Awareness Month: Watch Dr Raj Srirajaskanthan’s talk on Large and Small Bowel Neuroendocrine Cancers here. With further information on how diet and nutrition can help with staying healthy and manage symptoms here.
Testicular Neuroendocrine Cancer
April is Testicular Cancer Awareness month - Neuroendocrine Cancer of the Testes accounts for less than 1% of all testicular tumours. Diagnosis of Neuroendocrine Cancer of the Testes usually occurs following surgery or biopsy. Carcinoid Syndrome is a very rare...