Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
Large and Small Bowel Neuroendocrine Cancer
April is Bowel Cancer Awareness Month: Watch Dr Raj Srirajaskanthan’s talk on Large and Small Bowel Neuroendocrine Cancers here. With further information on how diet and nutrition can help with staying healthy and manage symptoms here.
Testicular Neuroendocrine Cancer
April is Testicular Cancer Awareness month - Neuroendocrine Cancer of the Testes accounts for less than 1% of all testicular tumours. Diagnosis of Neuroendocrine Cancer of the Testes usually occurs following surgery or biopsy. Carcinoid Syndrome is a very rare...
100,000 Genomes Project
Genomics : PART ONE : 100,000 Genomes Project - and beyond! In late 2012, the then Prime Minister, David Cameron, announced the 100,000 Genomes Project. Its four main aims were; to enable new scientific discovery and medical insights to bring benefit to patients and...