Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
You are still you, by Kath Lewis
Being diagnosed with neuroendocrine cancer tips life upside down (as will any type of cancer diagnosis) .It can take a long time to come to terms with, and not only is it a confusing and complex cancer, few seem to have heard of it either. Furthermore, its a cancer...
Barriers to Diagnosis Findings – Specialist Neuroendocrine Cancer Team
In 2020 we asked for members of our community to share their experiences of care to date. The purpose of this survey was to consolidate and add to previous national and global Neuroendocrine Cancer (NC)* patient experience surveys and reports, to gain further insights...
Symptoms of Neuroendocrine Cancer of the Small Bowel
April is Bowel Cancer Awareness Month : Symptoms of Neuroendocrine Cancer of the Small Bowel. Small Bowel Neuroendocrine Cancer, in early stage disease, can be a very silent disease – in that symptoms may not be present, however, if symptoms do occur, they may be due...