Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
Testicular Neuroendocrine Cancer
April is Testicular Cancer Awareness month The signs and symptoms of testicular cancer and how to check themselves is something all men should be aware of and know. Yet, many young and middle-aged men are uncertain or unaware of how to check themselves. A simple...
Captain Tom 100 Challenge for Neuroendocrine Cancer UK
Last April the 2.6 Challenge launched in a bid to save the UK charities. Many of you got involved and raised over £10,000 for NCUK. Also last April, a gentleman named Captain Tom Moore did 100 laps around his garden and raised an incredible £38.9 million for the NHS....
INCA President – Elect
We are delighted that Mark McDonnell, Chairman of NET Patient, Ireland, has been elected as the new INCA President-Elect. He will begin serving his two-year term as INCA President in 2022. Mark is a true and committed advocate for our community and will be an...