Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
Lockdown Update:
ENGLAND: Some of the rules on what you can and cannot do will change on 12 April. You can read the ‘COVID-19 Response - Spring 2021’ (the roadmap out of lockdown) for more information on how COVID-19 restrictions will be eased in England. You can also read the law...
Neuroendocrine Cancer of the Bowel – Awareness Month
This April we are supporting Bowel Cancer Awareness month and over the next few weeks we will be sharing information and support for those living with Neuroendocrine Cancer (NC) of the Bowel. You can learn more more about NC of the Small and Large Bowel here ➡️ ...
You raised £1783.29 through Facebook in March!
Thank you to everyone who set up Facebook fundraisers, and to all who made donations through Facebook and Instagram last month. You raised £1783.29!! 🌸 Whether you’re celebrating a birthday, anniversary or wedding – or you would like to raise funds in memory of a...


