Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
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Ovarian Neuroendocrine Cancer – The Facts – Symptoms
Primary Ovarian Neuroendocrine Cancer symptoms mimic Ovarian cancer symptoms: Symptoms include: ❗ Persistent bloating – not bloating that comes and goes ❗ Feeling full quickly and/or loss of appetite ❗Pelvic or abdominal pain (that's your tummy and below) ❗Urinary...
Diet, the Digestive System and Neuroendocrine Cancer
Dietary Issues 🍊🥗🍔 - Diet, the Digestive System and Neuroendocrine Cancer. When thinking about dietary issues and Neuroendocrine Cancer it is important to understand our digestive system. This animation will give you an overview of how it all works:...
Improving Care – Perspectives and Recommendations from the Rare Disease Community
'Learning from the Pandemic to Improve Care for Vulnerable Communities: The Perspectives and Recommendations from the Rare Disease Community'. This editorial touches upon the situation of people living with a rare disease during the pandemic, our recommendations...