Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
Research – New drug for the treatment of pancreatic neuroendocrine tumours (PNETs)
Kate Lines - NCUK research grant awardee In 2018, Kate was awarded the NCUK research grant. The aim of the project was to develop a new drug for the treatment of pancreatic neuroendocrine tumours (PNETs). It has previously been shown that a drug called JQ1, which...
NHS Rolls Out Capsule Cameras to Test for Cancer
NHS Rolls Out Capsule Cameras, to more people, in a trial to test for cancer - Miniature cameras which patients can swallow to get checked for cancer, of the digestive system are being trialled, in a wider audience, across the NHS. The digestive system and how it...
Coping with Sc-Anxiety by Kate Quirk – Voices of NCUK
Coping with Sc-Anxiety by Kate Quirk - Voices of NCUK One way or another, a cancer diagnosis is life changing. And when you are living with cancer, there will always be periods of time when your mind runs away with you, especially down the road of ‘what if’?...