Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
Modernising Support for Independent Living: The Health and Disability Green Paper
In April this year, the government published a Green paper consultation on proposals for PIP reform. The paper was introduced by The Rt Hon Mel Stride MP in April 2024: Former Secretary of State for Work and Pensions: “We want to ensure that we have a welfare system...
PERT Update: Addressing Current Shortages
At Neuroendocrine Cancer UK, we have been actively collaborating with our charity partners to tackle the urgent need to resolve the ongoing shortages of Pancreatic Enzyme Replacement Therapy (PERT). Our joint efforts have resulted in significant strides towards...
June Highlights
Thanks to you, this is what we have been able to achieve this month. - - 🎉 June Highlights! 🎉 💊 We've been working...