Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
Catherine Bouvier Ellis steps down after 19 years leading Neuroendocrine Cancer UK
Neuroendocrine Cancer UK today announces that Catherine Bouvier Ellis, its Co-Founder and Chief Executive Officer, will be stepping down from her role on October 8, 2025, after two decades of transformative leadership and unwavering dedication to the neuroendocrine...
Hero Awards 2025 – Now Live!
Neuroendocrine Cancer UK Hero Awards 2025 – Launch today!
‘SCAN’ Survey 2025 – One voice matters, thousands create change. Help improve care for NET patients!
Neuroendocrine Cancer UK is pleased to announce the launch of the International Neuroendocrine Cancer Alliance (INCA) ‘Survey of Challenges in Access to Diagnostics and Treatment for Neuroendocrine Cancer Patients’ (SCAN) 2025.