Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
Hero Awards 2025 – Now Live!
Neuroendocrine Cancer UK Hero Awards 2025 – Launch today!
‘SCAN’ Survey 2025 – One voice matters, thousands create change. Help improve care for NET patients!
Neuroendocrine Cancer UK is pleased to announce the launch of the International Neuroendocrine Cancer Alliance (INCA) ‘Survey of Challenges in Access to Diagnostics and Treatment for Neuroendocrine Cancer Patients’ (SCAN) 2025.
INCA Advocacy with Catherine Bouvier
Cathy facilitated a discussion with members of the INCA community from Australia, Africa, USA, India, UK & Norway to share insights and experiences, but to explore how we can collectively strengthen the voice of patients in shaping their care and the systems that...