Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
Organ Donation / Transplantation Week September 18th – 24th 2023
Organ Donation and Transplantation Week aims to raise awareness about the ongoing need for organ donors and shares information about donation and transplantation. As this year’s Organ Donation Week comes to a close, we offer our support in continuing the conversation...
Leading Experts Emphasise the Crucial Role of Research in Fighting Neuroendocrine Cancer!
Why is research so important? Neuroendocrine cancer is a complex disease, and every step in understanding it takes us closer to accurate diagnosis, prevention, and effective treatment. Over the coming weeks, we will be sharing insightful videos featuring...
Understanding Neuroendocrine Cancer of the Breast
- Neuroendocrine Cancer of the Breast (NECB) is a rare and distinct form of breast cancer, accounting for less than 5% of all breast cancer cases. This unique subtype can be challenging to diagnose and treat, often requiring specialised medical expertise and precise...