Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
*New Patient Story* ‘That Fraudulent Feeling’ by Simon
In a candid and inspiring update, Simon Walsh, a Neuroendocrine Cancer UK Ambassador, reflects on his pathway since his decision to retire early due to an unexpected cancer diagnosis. Simon, who was diagnosed with cancer two and a half years ago, questions the concept...
For members of our community living in Mid and South Essex: Have Your Say!
The NHS Mid and South Essex Integrated Care Board (ICB) is supporting Mid and South Essex NHS Foundation Trust (MSEFT) in its work to improve how people hear about hospital appointments and ongoing treatment. NHS Mid and South Essex Integrated Care Board (ICB) is...
Rapid Response to Neuroendocrine Cancer UK Community Reported Creon®️ Shortage : August 2023
Neuroendocrine Cancer UK Community Reported Creon® Shortage : August 2023 For a number of people with Neuroendocrine Cancer - pancreatic enzyme replacement therapy (PERT) is an essential part of daily life - taken to promote and maintain nutritional uptake and manage...