Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
Neuroendocrine Cancer: patient pathway goes to Parliament!
On 14th June 2023, Neuroendocrine Cancer UK, alongside The Health Policy Partnership and a group of dedicated supporters, travelled to Parliament to share the neuroendocrine cancer: ideal patient care pathway with MPs. The pathway was created to address the persistent...
Cervical Neuroendocrine Cancers – A focus on symptoms
Primary Neuroendocrine Cancers of the Cervix account for less than 3% of all cancers of the uterine cervix - with diagnosis usually made by histology review, following surgery or a biopsy. Neuroendocrine Cancers (or NENs) are typically located in the gastrointestinal...
Managing Pain and Neuroendocrine Cancer
Neuroendocrine Cancer UK Presents: Managing Pain and Neuroendocrine Cancer - Insights from Dr. Ros Taylor, Palliative Specialist Please watch our 2021 Summit video which explores the complexities of pain management in neuroendocrine cancer. Join us as Dr. Ros Taylor,...