Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
Coronation Champion – Enola Wright
**Inspirational Volunteer Enola Wright Named Coronation Champion** April 25, 2023 – Enola Wright, a dedicated volunteer from West Mersea, Essex, has been recognised as one of the 500 Coronation Champions for her tireless work in serving the Insulinoma community. The...
Travelling and Neuroendocrine Cancer
Travelling with Neuroendocrine Cancer can be daunting and stressful, but it doesn't have to be. Whether it's for work, a mini-break or just a getaway, taking some time to prepare in advance can make all the difference. We have compiled a comprehensive Travel Guide to...
Webinar on AI in Cancer Care: An Overview
Artificial intelligence has given rise to great expectations for improving cancer diagnosis, prognosis, and therapy but has also highlighted some of its inherent outstanding challenges, such as potential implicit biases in training datasets, data heterogeneity, and...