Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
Patient advocacy in action: discussion with Mark McDonnell
24th October 2022 Mark McDonnell is Chairperson of the NET Patient Network in Ireland and President of the International Neuroendocrine Cancer Alliance (INCA). Neuroendocrine neoplasms are classified as an orphan disease, meaning they affect a small portion of the...
UK Clinical ‘Trials that Matter’
As many of you will know, Neuroendocrine Cancer UK is a member of INCA (the International Neuroendocrine Cancer Alliance). INCA is the global voice for patients with Neuroendocrine Cancer, with a mission to raise awareness, push for scientific advancements, focus on...
The Impact of COVID-19 on the Management of NETS
INCA Supported a Study on the Impact of COVID-19 on NET Management, Now Published in the Journal of Neuroendocrinology An abstract of a study with the active involvement of the global neuroendocrine tumor (NET) community was published in the Journal of...