Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
NCUK’s, Leanne’s Mount Kilimanjaro Challenge, October 22
On the 21st of October 2022, Neuroendocrine Cancer UK's Operations Manager and Digital Lead, Leanne Talbot, along her three friends (Aisling, Erin, and Laura) will be landing on African soil ready to take on not only the highest peak in Africa but the highest...
NHS Genomics Strategy
NHS Genomics Strategy launched today at #NHSGenomics2022 by @AmandaPritchard It sets out our ambitions over the next 5-10 years to harness the potential of genomics to transform patient care. https://www.england.nhs.uk/genomics/genomics-strategy/
Call for better awareness of ‘quiet cancers’
It was the type of cancer that killed Apple co-founder Steve Jobs in 2011 and American soul singer Aretha Franklin in 2018. It's the cancer that RTÉ journalist, Tommie Gorman has been living with for more than 20 years, yet neuroendocrine tumours (NETs) are still not...