Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
Nigel’s 100km London to Brighton Bike ride!
After a pasta – packed supper on Friday we tried on our new orange high vis cycling jerseys which Olivia had bought as a team strip and equally bright socks, ready for the start on Saturday morning. No one would fail to see us coming even in the dark shady lanes....
Neuroendocrine Cancer: Vitamins and Minerals – is supplementation necessary?
The presence and/or treatment of Neuroendocrine Cancer can disrupt normal digestive function - this can impact on our ability to absorb nutrients, including vitamins and minerals, from the food we eat. Malnutrition has been reported in up to 40% of patients...
NHS Health and exercise commonwealth campaign
The Commonwealth Games 2022 has proven to be one of the most successful ever held, with more than 5,000 athletes from 72 nations competing in 19 different sports. The Games have now concluded, and the baton has been passed on to Australia. However, the legacy of being...