Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
So, here is what happened when we tried to swim the channel… by Patrick Coffey
Ever since I told people that I wanted to raise awareness of, and money for, Neuroendocrine Cancer UK, I have been amazed and humbled by the generosity of so many. Alongside private donations and the JustGiving page, we have raised c. £13k so far - far more than I...
Staying Safe in the Heat – Is there anything you should do to cope with scorching outdoor temperatures if you’re in active cancer treatment?
Keeping cool during the summer can be a challenge for even the healthiest individuals. So, how do you manage it when you’re a cancer patient? Is there anything special you should do to cope with scorching outdoor temperatures if you’re in active cancer treatment? ...
Mental health and wellbeing consultation response
We appreciate many of the issues that are discussed in this submission on the new National Mental Health Plan which are very relevant to our community, particularly around the loneliness that people can experience when diagnosed with and living with a rare disease as...