Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
Lamb Jam Charity Music Festival raises over £4000 for NCUK
On Saturday 25th June 2022, the Forage Farm Shop and Kitchen (located in the Cowbridge area), hosted a debut festival in collaboration with charity music event Lamb Jam. The one-day event featured five local cover bands playing a variety of music from across the ages,...
Policy Forum Wales – issues related to clinical and policy priorities for cancer care in Wales
The seminar focused specifically on issues related to clinical and policy priorities for cancer care in Wales. The agenda was set against the backdrop of the Quality Statement for Cancer, which sets out quality attributes and the vision for good quality cancer...
Neuroendocrine Cancer UK celebrates the 20th Anniversary of its foundation!
On Saturday 11th June, Neuroendocrine Cancer UK celebrates the 20th Anniversary of its foundation! In 2002 the “Living with Carcinoid” Support Group was first registered with the Charity Commission. This group grew into “NET Patient Foundation”, further evolving...