Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
NCUK review of 2021 and Christmas Closure
As 2021 draws to a close, we'd like to leave you with a roundup of everything that we've achieved this year - but as always this would have not been possible without your support. Our office and helpline are now closed until Tuesday 4th January 2022, when all of our...
Review of Molecular Radiotherapy in the UK
This document presents a review of the present state for the provision of molecular radiotherapy services across the UK, concentrating on unequal provision across the four nations and proposals as to how these issues can be addressed to ensure equity of access to...
Plan B’ lockdown rules – how it has affected NCUK
Due to the recent ‘Plan B’ lockdown rules, all staff are now working from home. Therefore, any patient information ordered after the 09/12/2021, will be dispatched when we return to the office in the New Year. Apologies for any inconvenience caused, Team NCUK.