Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
Neuroendocrine Cancer – Tests & Results
Types of Tests & Getting Your Results. Neuroendocrine Cancer is often small, starting out the size of a grain of sand and often not visible to the most accurate scans until it gets to about half a centimetre across or the size of a pea. It can occur in various...
Virgin Money Giving Closure… What does that mean for me?
Virgin Money Giving Closure... What does that mean for me? As of the 20th November, Virgin Money Giving will be closing down. For anyone that makes regular monthly donations to us through VMG, please note that we will be contacting you shortly with details of how to...
NCUK’s Kate Quirk features in Pharmafield
My whole life changed in 2003, with a diagnosis of what was called back then, a Typical Lung Carcinoid. In support of World Neuroendocrine Cancer Day, Kate Quirk shares her story of living with lung neuroendocrine cancer and how she is using her experience to help...