Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
EVENT – Difficult Conversations : South Wales
In the lead up to Neuroendocrine Cancer Day, our NCUK Summit 2021 explores some of the aspects of life that can be hard to contemplate, much less talk about. As part of this initiative we would like to share some information about a series of Macmillan events being...
World Neuroendocrine Cancer Day
Know the symptoms. Push for diagnosis. On November 10 help us raise awareness of Neuroendocrine Cancer by using your social media account to contribute to the global conversation and help us spread the word. Visit - https://incalliance.org/ncd-2021/custom-poster/...
£3,024.42 raised during October through Facebook & Instagram
Thank you to everyone who set up Facebook fundraisers, and to all who made donations through Facebook and Instagram. You raised £3,024.42 throughout October 🎃 💍🎈👩❤️💋👨 Whether you’re celebrating a birthday, anniversary or wedding – or you would like to raise...