‘SCAN’ Survey 2025 – One voice matters, thousands create change. Help improve care for NET patients!

Sep 3, 2025

The Survey of Challenges in Access to Diagnostics and Treatment for Neuroendocrine Cancer Patients (SCAN) 2025 is launched.

Neuroendocrine Cancer UK is pleased to announce the launch of the International Neuroendocrine Cancer Alliance (INCA) ‘Survey of Challenges in Access to Diagnostics and Treatment for Neuroendocrine Cancer Patients’ (SCAN) 2025.

This survey aims to collect insights and experience from NET patients and caregivers, and healthcare professionals from different specialties on the state of NET diagnostics, access to treatments and care around the world. Please click here to complete: https://incalliance.org/scan2025/

SCAN 2025 key measures are:

  • The availability of NET diagnostic tools
  • The level of access to NET treatments
  • The level of access to ongoing checks
  • The level of access to healthcare professionals
  • Out-of-pocket costs of NET treatment and care
  • The provision of supportive services
  • Leading healthcare issues NET patients face today

SCAN 2025 Global Survey comprises online questionnaires for NET patients & caregivers and for healthcare professionals, available in 15 languages: English, Arabic, Bulgarian, simplified Chinese, traditional Chinese, Dutch, French, German, Hindi, Italian, Japanese, Portuguese, Russian, Spanish and Swahili.

SCAN 2025 Global Survey is open to respondents from 1st September till 30th November 2025.

Please click here to complete: https://incalliance.org/scan2025/

This global survey in 2025 is an updated replication of SCAN 2019, which is the most significant global compendium of NET data to date. 2359 NET patients and 436 healthcare professionals (HCPs) from 68 countries across 6 continents shared their experience. The 2019 survey was available in 14 languages. The valuable findings on the global, regional and national state of NET diagnostics and care, as well as the level of awareness of diagnostic tools and treatments among the target audiences were highlighted in 22 articles and posters in medical journals and medical conferences. The INCA article in Journal of Neuroendocrinology was certified as being among the top 10% most read papers published in 2023.

SCAN 2025 Global Survey aims to compare the results on the same key measurements from 2019 and map the status of NET diagnostics, treatments and care from the point of view of patients and healthcare professionals, to help drive change for the betterment of NET patients worldwide.

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