Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
Taking Control of Cancer Podcast: Episode 31: Uncovering neuroendocrine cancer
Taking Control of Cancer is a podcast series from the North East London Cancer Alliance to help overcome common cancer myths, fears and barriers. The series aims to provide both patients and healthcare professionals with tangible things they can do to help when it...
Winter Vaccinations & Staying Well This Season
Winter Vaccinations & Staying Well This Season As the colder months roll in, many of our community are doing what they can to keep well through winter – including protecting themselves and loved ones by getting vaccinated against certain winter illnesses, like...
Bronchopulmonary Carcinoids (BPCs) Unveiled – In-Person Event – 12th January 2026
Save the Date: Monday, January 12, 2026 — Bridging the Gaps in Care and Shaping the Future is a high-quality, in-person national educational event taking place from 8:30 AM to 4:30 PM at the Holiday Inn Manchester – City Centre. Aimed at all clinicians involved in the care of patients with BPCs, the day will provide up-to-date insights on diagnosis, treatment, and long-term management, while highlighting unmet needs and setting future priorities for improving care. This event also offers a unique opportunity for UK-wide networking and collaboration.