Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
UK Government announces commitment to a National Cancer Strategy for England
UK Government announces commitment to a National Cancer Strategy for England Several weeks ago, Neuroendocrine Cancer UK, and fellow charities, co-signed the joint One Cancer Voice letter to the Secretary of State for Health and Social Care, Wes Streeting,...
PERT Update
As some of you may be aware, we are working with fellow charities and patient organisations to ‘lobby’ and work with the government and other stakeholders to better address PERT shortages. Our working group of charities and patient organisations meets monthly, and...
Fair Market Value for Charities in Partnership Work
Charities and patient organisations, like Neuroendocrine Cancer UK, alongside individual patients, play a crucial role in optimising equitable patient care: driving forward, facilitating and supporting, access to expert care, research and innovation. We are often the...