Supporting the

Neuroendocrine Cancer Community

Assessment of major gaps

Dec 19, 2019

Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.

Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.

Recent News

Neuroendocrine Cancer UK: PERT UPDATE 30th May 2024

Neuroendocrine Cancer UK: PERT UPDATE 30th May 2024

As you may be aware, over the last few months, we at Neuroendocrine Cancer UK, have been working with charity partners to address the urgent need to resolve the persistent shortage of PERT (Pancreatic Enzyme Replacement Therapy) medications: Creon®,  Nutrizym® 22 and...

read more