Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
Winter Vaccinations & Staying Well This Season
Winter Vaccinations & Staying Well This Season As the colder months roll in, many of our community are doing what they can to keep well through winter – including protecting themselves and loved ones by getting vaccinated against certain winter illnesses, like...
Bronchopulmonary Carcinoids (BPCs) Unveiled – In-Person Event – 12th January 2026
Save the Date: Monday, January 12, 2026 — Bridging the Gaps in Care and Shaping the Future is a high-quality, in-person national educational event taking place from 8:30 AM to 4:30 PM at the Holiday Inn Manchester – City Centre. Aimed at all clinicians involved in the care of patients with BPCs, the day will provide up-to-date insights on diagnosis, treatment, and long-term management, while highlighting unmet needs and setting future priorities for improving care. This event also offers a unique opportunity for UK-wide networking and collaboration.
Catherine Bouvier Ellis steps down after 19 years leading Neuroendocrine Cancer UK
Neuroendocrine Cancer UK today announces that Catherine Bouvier Ellis, its Co-Founder and Chief Executive Officer, will be stepping down from her role on October 8, 2025, after two decades of transformative leadership and unwavering dedication to the neuroendocrine...