Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
Neuroendocrine Cancer of the Lung Handbook
Neuroendocrine Cancer UK's Neuroendocrine Cancer of the Lung handbook contains information including; - Lung NENs: Cancer development, genetics, grading and staging - Types of Lung NEN – and the symptoms they may cause - Syndromes associated with Lung NEN - Diagnosis,...
Faces of NCUK
Around 36,000 people are affected by Neuroendocrine Cancer in the UK, with over 5,000 people newly diagnosed each year. That is more than 13 people a day. For many the first time they will have heard about Neuroendocrine Cancer will be the day they receive their...
Just Diagnosed, we’re here for you
We cannot tell you that we know how you feel right now or how you may feel as time goes by… The main thing to try and remember at this stage is that you really aren’t alone. It’s easy to feel isolated when you find out you have an uncommon condition, but getting the...