Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
Faces of NCUK, Kevin’s Story
Name: Kevin Age: 53 Neuroendocrine Cancer Site: Small Intestine / Liver Kevin’s Story: I was diagnosed in early 2021 with primary NET in my small intestine and secondary in my liver after initially attending A&E with suspected gall stones, and as with many people...
NCUK 2021 Skydiving Challenge – raising money for Neuroendocrine Cancer research
✈️🪂 Leaping out of an aircraft and plunging down to earth at speeds of over 120 mph is a breathtaking, heart-pounding kick of a lifetime. If you want extreme, if you want extraordinary, there's no better thrill than skydiving. Thats why we have organised our biggest...
Neuroendocrine Cancer UK Launches Bridging the Gap Campaign
NCUK Launches their Bridging the Gap Campaign, the second of our three 'Gap' Campaigns. What is the BRIDGING the Gap campaign? We are working towards and obtaining a dedicated Neuroendocrine care pathway to provide equitable, holistic, joined up care for all...