Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
NCRI Bone mets research survey
NCUK is happy to support NCRI's programme of work that aims to foster high-quality research on bone metastasis. We would like to invite you to support NCRIs work in this area by providing your views on the key research questions and broader challenges that need to be...
How is secondary Neuroendocrine Cancer treated?
As with more common cancers, the earlier in the development of a primary cancer it is diagnosed, the higher the possibility of cure is. For Secondary Neuroendocrine Cancer there is no cure – HOWEVER, this does not necessarily make this a terminal diagnosis. No...
Neuroendocrine Cancer Clinical Trials
Taking part in a clinical trial can be a big commitment – with more travel to the hospital than normal, extra tests, scans, and an increased number of appointments. Whether you decide to take part in a clinical trial or not, you should receive the highest standard...