Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
Signs and symptoms of Testicular Cancer
April is Testicular Cancer Awareness month - Signs and symptoms of testicular cancer include: A lump or enlargement in either testicle (50-80%). A feeling of heaviness in the scrotum. A dull ache in the abdomen or groin. A sudden collection of fluid in the scrotum....
CALLING ALL LUNG NET AND NEC PATIENTS
20% of our Neuroendocrine Cancer community has a Lung primary. Lung NET and NEC can cause no, or lots of symptoms. Some may be similar - but many are different - to those experienced by people with a gut-based or other primary site. And reactions to SSAs (the...
Para Pheo Patient Survery
Have you been seen at the University of Cambridge in the UK in the past year for pheochromocytoma (pheo) paraganglioma (para)? This center has applied for a Center of Excellence designation from the Pheo Para Alliance and one of the criteria to be evaluated for...