Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
The Role of Patient Support Groups in Neuroendocrine Neoplasms Publication
NCUK is excited to announce that its review article “The Role of Patient Support Groups in Neuroendocrine Neoplasms”, co-authored by Catherine Bouvier and Teodora Kolarova (International Neuroendocrine Cancer Alliance), has been accepted for publication in Current...
Gut Surgery – How Diet can Help Neuroendocrine Cancer Patients
This booklet has been developed, in collaboration with the Royal Free Hospital to provide reliable dietary information for those with neuroendocrine cancer who may be considering or have had surgery of the gut (digestive system). The surgery may be to remove,...
Neuroendocrine Cancer – Types of Tests & Getting Your Results
Neuroendocrine Cancer is often small, starting out the size of a grain of sand. Often it is not visible to the most accurate scans until it gets to about half a centimetre across or the size of a pea. It can occur in various parts of your body and spread to different...