Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
INCA Advocacy with Catherine Bouvier
Cathy facilitated a discussion with members of the INCA community from Australia, Africa, USA, India, UK & Norway to share insights and experiences, but to explore how we can collectively strengthen the voice of patients in shaping their care and the systems that...
James Lind Alliance (JLA) Priority Setting Partnership (PSP) in Neuroendocrine Cancer
We are delighted to announce the launch of a James Lind Alliance (JLA) Priority Setting Partnership (PSP) in Neuroendocrine Cancer, jointly led by UKINETS and Neuroendocrine Cancer UK. This important national initiative aims to identify and prioritise the most...
Upcoming Nurse Webinar – 17th September 8am
Calling All Nurses: Join the Will Norman Nurse Webinar on Neuroendocrine Cancer
Join us on 17th September at 8am GMT for a free, online educational webinar focused on Neuroendocrine Cancer, brought to you in collaboration with NeuroEndocrine Cancer Australia, Neuroendocrine Cancer UK, and NeuroEndocrine Cancer New Zealand. This 2-hour session includes expert-led presentations and a live Q&A roundtable. Open to nurses only. Register now to secure your place!