Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
James Lind Alliance (JLA) Priority Setting Partnership (PSP) in Neuroendocrine Cancer
We are delighted to announce the launch of a James Lind Alliance (JLA) Priority Setting Partnership (PSP) in Neuroendocrine Cancer, jointly led by UKINETS and Neuroendocrine Cancer UK. This important national initiative aims to identify and prioritise the most...
Upcoming Nurse Webinar – 17th September 8am
Calling All Nurses: Join the Will Norman Nurse Webinar on Neuroendocrine Cancer
Join us on 17th September at 8am GMT for a free, online educational webinar focused on Neuroendocrine Cancer, brought to you in collaboration with NeuroEndocrine Cancer Australia, Neuroendocrine Cancer UK, and NeuroEndocrine Cancer New Zealand. This 2-hour session includes expert-led presentations and a live Q&A roundtable. Open to nurses only. Register now to secure your place!
Neuroendocrine Cancer UK Working with National Disease Registration Service – Get Data Out
Get Data Out We are delighted to announce that we are working, alongside neuroendocrine cancer expert clinicians, with the National Disease Registration Service (NDRS) Get Data Out programme team, to add neuroendocrine cancers to the list of cancers the NDRS...