Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
TEMPORARY shortage of Creon® 25,000u capsules in the UK
Viatris, the marketing authorisation holder for Creon® in the UK, has informed us that they are currently experiencing a temporary supply constraint of Creon® 25000u capsules: therefore supply wholesalers and local pharmacies may be out of stock. - - The next...
Challenging Medical Certainty: The Key to Timely Neuroendocrine Tumour Diagnosis
- HAVE THE CAPACITY TO DOUBT YOUR CERTAINTY: '... Part of the delay in diagnosing NETs is the overconfidence of the consulting doctor, who doesn't doubt their own opinion that 'there is nothing serious being missed'.... David Bartlett, GP. Last week saw the 11th INCA...
Save the Date: Neuroendocrine Cancer UK’s 2023 Virtual Conference
- We're excited to announce our upcoming virtual conference, a must-attend event for the neuroendocrine cancer community. Mark your calendars and get ready for a day filled with insights, connection, and support. Why Attend? Learn from Experts: Gain valuable insights...