Assessment of major gaps

Dec 19, 2019

Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.

Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.

Recent News

Neuroendocrine Cancer – The ‘Good’ Cancer

Neuroendocrine Cancer – The ‘Good’ Cancer

- "Neuroendocrine Cancer... Oh, that's a good cancer to have!" Let's talk about something that might initially sound a bit puzzling – being told you have a "good cancer." We know it might seem like a contradiction in terms, but for many diagnosed with neuroendocrine...

read more
Neuroendocrine Cancer UK Launches Practice-Changing Grants

Neuroendocrine Cancer UK Launches Practice-Changing Grants

Neuroendocrine Cancer UK is thrilled to announce the launch of our Practice-Changing Grants initiative, which is part of our Advancing Research campaign. The grants are designed to identify practical solutions that significantly enhance the well-being and experiences...

read more