Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
Navigating Nerve-Wracking Appointments: Useful Questions
Facing nerve-wracking appointments is an inevitable part of having neuroendocrine cancer. The uncertainty can feel overwhelming, whether it's awaiting results, receiving a diagnosis, or discussing treatment options. At Neuroendocrine Cancer UK, we understand the...
Join fundraiser, Rob for a 24-Hour Darts Marathon
We are thrilled to announce a fundraising event that all dart enthusiasts can enjoy. Neuroendocrine cancer patient, Rob, has taken the initiative to organise a 24-hour darts marathon in aid of Neuroendocrine Cancer UK. Event Details: 📅 Date: 5th - 6th...
From GP to Fundraiser: Dougie’s Inspiring Story
Neuroendocrine Cancer UK is delighted to spotlight the remarkable story of Dougie Burgess, a retired GP from South Lincolnshire. Amongst the challenges of the Covid lockdown, Dougie was confronted by a sub-acute small bowel obstruction, necessitating a life-altering...